Tuesday, May 11, 2010
POTS on "HOUSE"
"After a hard week, Friday and Saturday I spent doing nothing but watch TV. I had to crawl everywhere and completed about 3 sentences all day - relied heavily on hand signals and key words. I also noticed that my chest got stupidly tight when I did anything upright, and my legs and arms kept 'switching off', light headed, no concentration, brain fog etc. and that my heart rate seemed to go pretty fast at times.
"I actually did this on my Tilt Table tests too - I was talking relatively coherently with a heart rate of 170ish, saying I was 'OK', then they lay me down again and I relaxed and was completely unable to talk. Just mumble. In hind sight, I had felt completely rotten and only part alive at 170bpm, but didn't have the mental capacity to recognize it. I was functioning because I had to. Complicated by the fact that I am scared to be seen as exaggerating my symptoms because that was what I was always accused of as a child. When I could relax again and the adrenaline was no longer 'needed' I couldn't talk. As if I needed the 'fight or flight' reaction to make me able to do the basics."